Tuesday, January 17, 2012

Round 2


Well, I am back at Hotel Mission for the next week. Round 2 of my chemo started yesterday, and so far so good. Feeling pretty well, walking around my floor, reading, doing homework, chatting with my visitors, and just relaxing.  Tomorrow I have a spinal tap, where they will do in and take a sample of my spinal fluid, and also put some chemotherapy in that space to make sure all my cells are treated.  This time was much easier, since I still have my central line in my arm, I didn't have to be poked at all. Just hooked up and got started. I miss my little dog Rhino, but Richie is taking care of him, and he has his best friend/sister Zoey to play with at home. My appetite is starting to go down, but thats ok, once I get home it will be better. Love you all !!!

Friday, January 13, 2012

My fundraiser was a HUGE success !

I have the best support system, hands down !! Last night was the fundraiser Lizette set up for me at Chili's. There were over 100 people there, I couldn't believe it.  The restaurant was packed.  At times there was even a 45 minute wait. There were awesome friends, some friends I haven't seen since elementary and high school, family, co-workers, nursing school friends, doctors, bike crews, and even firefighters.  I was overwhelmed with all the support.  At the end of the night, the manager said it was the highest turnout for a fundraiser he had ever seen.  Everyone that was there last night had checks totaling up to over $4,500 which is unbelievable really.  My portion of that was $700, my donation box had $660 in it, and my co-workers had wristbands made that completely sold out in about an hour.  Overall, we raised over $1300 last night. HUGE success,but I couldn't have done it without everyone's help.  Thank you from the bottom of my heart to everyone who has supported me, who came out last night, and has taken time out of their life to make a difference in mine. I love you all, and am so blessed to have your love and support.  YOU ROCK !!!!

Wednesday, January 11, 2012

I finally set up a donation fund

For those of you that asked me if I had a donation account set up, I signed up for a paypal account. At first I wasn't going to, but I got an overwhelming amount that asked me, and a lot of people that wanted to donate directly rather than through a fundraiser that would only donate a percentage toward us. My email for the account I set up is Nurselisa29@gmail.com Thanks everyone in advance for all your support.

Friday, January 6, 2012

Nah Nah Nah Nah.....Hey Hey Hey......Goodbye !!

My mop was thinning out quickly, which was not good for my mental sanity. I had my wonderful husband shave my head. I think he thought I went nuts, and I cried for a minute, but I think he did a darn good job :)

Thursday, January 5, 2012

My Fundraiser

I am so excited to be given the opportunity to do a fundraiser to assist with some of the costs of my treatment.  It will be at Chili's Restaurant off Crown Valley in Mission Viejo on January 12th from 4pm till close.  I am warning you all now, I will have a shaved head by then too, but don't worry I am gonna rock it ! Yesterday I noticed my hair shedding 10 times more than normal, and in the shower the same.  For my mental sanity, I decided I am going to shave my head before it falls out. For me, it is less traumatic, and it's one way I can have some control over this cancer.

As many of you know, Richie is in the military, so we have Tricare health insurance. They are truly amazing, and are covering nearly 100% of all my treatments.  We are truly blessed to have this insurance, because I have heard cancer treatment beginning to end can actually run upward of a million dollars.  Well, with any regular insurance, we would have (at the very minimum ) copays and/or a percentage we would be responsible for. With those kinds of figures, you can imagine even being responsible for 10% of a million is a huge amount.  The one thing Tricare does not cover was fertility treatment, which I was told I needed to do prior to starting chemotherapy.  I had to take hormones, and retrieve my eggs so they were waiting for me after treatment.  It was really hard to say if I would be able to get pregnant on my own after, so we decided this was something we wanted to do.  Once chemo starts, and it starts killing away various cells in my body, there was no turning back.  So we harvested my eggs, and we have 7 fertilized healthy little embryos to go back to once I get the "all clear" from my doctor.  Many of you probably haven't looked into this, god knows I hadn't before I was diagnosed. But fertility is like plastic surgery....... most insurances do NOT cover it (mostly because it's not medically necessary) and everything is to be paid in full up front.  LIVESTRONG offers a program that I qualified for that cuts the cost down, which does help tremendously, but the cost is still pretty high, totaling quite a few thousand dollars.  Because I am a nurse in the same building as my fertility doctor, and because the reason I went to see him and the time constraint we had to get started asap, he is allowing me to make payments (something his office really doesn't do).  We are doing this fundraiser to assist  with these costs, and saving some to supplement my paychecks a little since I am on disability through the end of my treatment.

So many people have already responded they are coming, and most of them are bringing friends and family with them too.  I am blown away at the kind of support I have received from everyone.  People that I see often, down to friends I haven't seen since I was little. Everyone has stepped up in a unique way, and all together it has provided me with so much strength that I feel like I can do anything, including beating this thing and moving forward with my life in a big way.  I have a little motto for my treatment, and even when I am having moments I am scared or sad, I allow myself to feel sad for a few minutes, but then tell myself this .....................................CALM DOWN, I'VE GOT THIS !!!!

Sunday, January 1, 2012

A New Year, New Goals, and New Hair !!

Happy New Year everyone !! I am so ready to get this year started, and get it handled.  Two days ago, I got my hair cut.  Im donating what extra I chopped off to Locks of Love, which you have probably all heard of. It's an organization that takes hair donations, and makes wigs for deserving patients needing wigs during cancer treatment.  I figured I had so much hair, might as well put it to some good use before I eventually lose it. My doctor said  it will start to fall out soon, and I feel that for me, it will be less traumatic when that happens when my hair is shorter. But beware everyone, when my hair does start to fall out, I'm not fighting it.  I am gonna go with it. I am shaving my head, GI Jane style lol.  Ill probably get a wig or two, for when I am going out and stuff.  I'm so excited that everyone seemed to like my short hair, because maybe now I will get a short wig too. I really love my new hair, and have to say I am a little bummed it is going to go away now.  One thing is for sure, I would probably never have done a hair cut like this without being diagnosed, so this definitely got me out of my comfort zone to try new things. Pleasant surprise, maybe I should try these new things more often. Lesson learned ! Thank you all for all your support. I truly have the best support system :)